Data & Specimens

updated 5/3/2021

How to Access Data & Specimens

• CHS Data & Specimen Distribution Policy
• NHLBI Data Repository (BioLINCC)

I. Data

CHS Data Collection Dates and Overview

• Summary & Frequency of Clinic Visit Data
• Data Collection Forms (non-Events)
• Study Component Schedules
• Baseline Data Summary
• Baseline Monograph

Specific Data Types:

• As of 9/2017:  *New Events Dataset available (follow-up through June 30th, 2015)*
• Events Data Collection Overview  
• Events Data Collection Forms
• CMS (Medicare) Data
• Genetic Data Available at CHS
• Summary of Genetic Consents frequency

Data Protection Documentation

• CHS De-Identification & Protection of Data (version 8-2-2018)
• CHSCC Confidentiality Memo (version June 2003)
• Revised Policy for Conducting and Reporting Genetic Research(version 3-21-2001)

II. Specimens

Overview of CHS Specimen Collection

• Repository Status Report (serum/EDTA only - August 21, 2019)
• Biospecimen Policy
• All Stars Study (Year 18): Requests to use All Stars specimen require approval by All Stars PI, Anne Newman.

Questions?  Contact Us

Related Links:

• Working Groups
• Ancillary Studies
• Publications Policy
• Presentations Policy
• Funding CHS
• Forms & Agreements page
• FAQ (Frequently Asked Questions)